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Health Issues

Amyotrophic lateral sclerosis (ALS)

Assistance and Comfort

If you or someone you care about is living with ALS, we encourage you to learn as much about the disease as possible and seek help when you need it. There is more information available from the groups below. You can click on the links below, write or call them to receive more information.

• The ALS Association’s Care Services electronic newsletter, The Exchange, is published monthly. Sign up to receive The Exchange
ALS Association Certified Centers and Clinics who work closely with our chapters
• There are many books for and about ALS patients and their family caregivers. Use the ALS Association's FYI Information Index to find out more.

• Support groups give a place for family caregivers to meet one another and offer each other mutual support and practical problem solving strategies. Find your ALS local support group.
• Most ALS Association chapters have loaner equipment such as lifting devices, wheelchairs and communication devices can make a significant difference to the family caregiver and the ALS patient.

• For more information on neurological disorders or research programs funded by the National Institute of Neurological Disorders and Stroke, contact the Institute's Brain Resources and Information Network (BRAIN) at:

BRAIN
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
http://www.ninds.nih.gov

• The following organizations are also great resources for people dealing with ALS. 


ALS Association
1275 K Street, N.W.
Suite 1050
Washington, DC 20005
advocacy@alsa-national.org
http://www.alsa.org
Tel: 202-407-8580
Fax: 202-289-6801

Les Turner ALS Foundation
5550 W. Touhy Avenue
Suite 302
Skokie, IL 60077-3254
info@lesturnerals.org
http://www.lesturnerals.org
Tel: 888-ALS-1107 847-679-3311
Fax: 847-679-9109

Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718-3208
mda@mdausa.org
http://www.mda.org
Tel: 520-529-2000 800-572-1717
Fax: 520-529-5300

Project ALS
3960 Broadway
Suite 420
New York, NY 10032
info@projectals.org
http://www.projectals.org
Tel: 212-420-7382 800-603-0270
Fax: 212-420-7387

ALS Therapy Development Institute
300 Technology Square
Suite 400
Cambridge, MA 02139
info@als.net
http://www.als.net
Tel: 617-441-7200
Fax: 617-441-7299

Prize4Life
P.O. Box 425783
Cambridge, MA 02142